In a LinkedIn post, Monisha shared the challenges of travelling with her 14-year-old daughter, Keya, who has Spinal Muscular ...

She termed it a gratitude post meant to appreciate "the amazingly seamless experience" Hatkar and her daughter had flying ...

A Mumbai woman praised IndiGo Airlines for ensuring a smooth travel experience for her wheelchair-bound daughter.

Health activists demand government action to reduce the cost of SMA medicines, citing constitutional obligations and ...

The health activists argue that the government is empowered with effective law and policy tools and therefore should ...

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Application is supported by results from the DEVOTE study, which suggested that two doses of Spinraza (nusinerse) 50 mg taken ...

Thiruvananthapuram: The Kerala government is planning to launch a registry for rare diseases and set up a treatment clinic in ...

An investigational higher dose of spinal muscular atrophy drug nusinersen gains attention as the FDA and European Medicines Agency (EMA) considerate it as an alternative than the current lower ...

The Amsterdam-based biotech firm said that its melt curve analysis-based test is used as a first-tier genetic screening tool to aid the diagnosis of SMA.

Known online as Squirmy and Grubs, YouTubers Hannah and Shane Burcaw have over 1.8 million subscribers. The married ...

In a good-news-bad-news week for Biogen, the company will cut an undisclosed number of employees, just as a higher dose of ...