Father Darren Scott is now just hopeful of raising awareness of the rare condition while keeping his daughter Sophia ...
"Life is taken away from these children before they even have a chance to live it," says Megan Kempf of her two children, who ...
NEW ORLEANS — A young Louisiana woman was enjoying working as a registered nurse and raising her daughters with her husband. And then a glimpse at a TikTok video changed the direction of her life ...
HOUSTON — Sanfilippo Syndrome — also known as Mucopolysaccharidosis type III or MPS III — is a terminal, neurodegenerative rare disease. It causes children to lose all the skills they've gained, ...
Add Yahoo as a preferred source to see more of our stories on Google. Sixteen-year-old Logan Pacl from Washington is living with Sanfilippo syndrome. This rare neurodegenerative disorder, caused by a ...
The positions in the table below reflect the Cure Sanfilippo Foundation's position overall, domestically, within their sector, and in various subject areas based on their Share. Each position links to ...
Cure Sanfilippo Foundation is proud to have partnered with and supported this highly skilled and compassionate research team led by Dr. Polgreen (TLI), including the expertise of Dr. Eisengart ...
KNOXVILLE, Tenn. — Bryan and Blair Begbie said all they want for Rowan — their youngest daughter — is the chance to be a kid. However, the Food and Drug Administration issued what is called a Complete ...
When 3-year-old Olivia (Liv) Stoop of Muskego was very little, she was "obsessed" with her baby dolls that had diapers she could change. When her baby brother Liam was born on May 5, she begged her ...
Nine global foundations collaborate to grant $13.85 million for the continued advancement of lead Sanfilippo gene therapy programs Company receives infusion of an additional $5 million from exercise ...
KNOXVILLE, Tenn. — Bryan and Blair Begbie said all they want for Rowan — their youngest daughter — is the chance to be a kid. However, the Food and Drug Administration issued what is called a Complete ...
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