Hemophilia has a notable impact on sexual function and well-being for men, but they rarely discuss it with their doctors, a ...
Columnist Jennifer Lynne concludes a series on Domenic Catrine, whose life has improved after receiving gene therapy to treat hemophilia B.
Anger can be a positive emotion that can help transform medical trauma into empowered self-advocacy, columnist G Shellye ...
Men in South America with severe hemophilia A or B are burdened with both direct and indirect costs, which also affect ...
The cost of Hemgenix, a one-time hemophilia B gene therapy, will be covered for patients living in Canada, except in Quebec.
My childhood was idyllic. I am one of the few who say my high school years were some of the best of my life. When I went to college, I attended a university on the other side of town. I lived in the ...
Having a bleeding disorder is chaotic and confusing, but developing emotional well-being helps deal with it, writes columnist Joe MacDonald.
Scientists have developed new versions of clotting factor IX, called FIX, that may be used to create personalized treatments for hemophilia B.
Ina Fowler, 68, of Brooksville, Florida, lives with several conditions, including hemophilia C, platelet dysfunction, atrial fibrillation, and peripheral artery disease. She recently suffered a brain ...
Dinner with friends is a delightful escape from the daily grind, a precious opportunity to share moments of love and presence. Recently, another couple invited my husband, Joe, and me to dinner at ...
Last week, I drove two hours to my hemophilia treatment center (HTC) in Tampa, Florida — not just to see my hematologist or get my labs done, but to meet with the physical therapist. The distance was ...
A stolen bike was a serious issue for columnist Joe MacDonald's son Caeleb, who has limited mobility. Joe stepped in to offer help.