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3 years ago I just didn’t know… #tbcd #leukodystrophy #childloss #grief
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Quick answer- her body went from small spots of pneumonia to only one of her lungs having maybe 25% function. Her seizures were so frequent and almost impossible to control. Leukodystrophys cause the body to not function like a healthy body. Her muscles, organs, and brain couldn’t recover or heal. #leukodystrophy #leukodystrophyawareness #tbcd #tbcdawareness
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#Leukodystrophy can make it hard to swallow thin liquids, but Max has to take #Keppra every day. Here's how we make it easier! #dysphagia #TBCD #CureTBCD #tbcdawareness #leukodystrophyawareness #slp #disability #toddlermedicinehack #toddlermedicine #medicalmom #disabilityparenting #respectfuldisabilityparenting
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Coucou tout le monde, moi c’est Tabriz ☀️ Je suis une petite fille courageuse qui se bat tous les jours contre une maladie rare : la leucodystrophie. J’ai décidé avec ma famille de créer ce TikTok pour vous partager mon quotidien, mes rires, mes pleures, mes progrès et mon parcours ✨ On a aussi ouvert une cagnotte pour m’aider à aller au Center of Movement en Nouvelle-Zélande, pour continuer mes thérapies et progresser 💪 Merci à tous ceux qui me soutiennent, de près ou de loin 💕 👉 Lien dans l
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TikToksmiley.tabriz
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