I begged doctors to remove my eyeballs 😱🩹 #raredisease #medicalstorytime #disabilityawareness
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YouTubeFour Nine
I begged doctors to remove my eyeballs 😱🩹 #raredisease #medicalstorytime #disabilityawareness
Imagine being in pain that you'd literally rather be blind. 💔 22-year-old Mel has a rare disease that feels like bleach is being poured into her eyes 24/7. She’s homebound, taped shut, and fighting for a cure the world isn't even looking for yet. Video Credit: @melbrynn We create original series and editorial on the topics that matter to ...
549.7K views1 month ago
Shorts
Raising Awareness for Rare Disease Day and WSS
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Raising Awareness for Rare Disease Day and WSS
baidaugh
It’s rare disease day and around 300 million people live with a rare disease including 1 in 5 people with cancer. A disease is considered rare if it impacts less than 2000 people #raredisease #zebra #doctor #rarediseaseawareness #showyourstripes Disclaimer: For educational and entertainment purposes only and should not be regarded as medical advice or replace the advice of your physician
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It’s rare disease day and around 300 million people live with a rare disease
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Top videos
In honour of today being Rare Disease Day, I'm sharing part of my story. ❤️‍🩹🦓🎗️ I was diagnosed with a rare bone tumor called Giant Cell Tumor (GCT), a one in a million, aggressive tumor that destroyed my upper spine and left lifelong deficits. Sharing this isn't easy, but awareness starts with our stories. We need more research, more understanding, and more voices for those navigating the unknown. Thank you for being part of my journey as I continue to navigate life after GCT. 🫶 #raredisea
2:14
In honour of today being Rare Disease Day, I'm sharing part of my story. ❤️‍🩹🦓🎗️ I was diagnosed with a rare bone tumor called Giant Cell Tumor (GCT), a one in a million, aggressive tumor that destroyed my upper spine and left lifelong deficits. Sharing this isn't easy, but awareness starts with our stories. We need more research, more understanding, and more voices for those navigating the unknown. Thank you for being part of my journey as I continue to navigate life after GCT. 🫶 #raredisea
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In honour of today being Rare Disease Day, I'm sharing part of my story. ❤️‍🩹🦓🎗️ I was diagnosed with a rare bone tumor called Giant Cell Tumor (GCT), a one in a million, aggressive tumor that destroyed my upper spine and left lifelong deficits. Sharing this isn't easy, but awareness starts with our stories. We need more research, more understanding, and more voices for those navigating the unknown. Thank you for being part of my journey as I continue to navigate life after GCT. 🫶 #raredisea
2:14
In honour of today being Rare Disease Day, I'm sharing part of my story. ❤️‍🩹🦓🎗️ I was diagnosed with a rare bone tumor called Giant Cell Tumor (GCT), a one in a million, aggressive tumor that destroyed my upper spine and left lifelong deficits. Sharing this isn't easy, but awareness starts with our stories. We need more research, more understanding, and more voices for those navigating the unknown. Thank you for being part of my journey as I continue to navigate life after GCT. 🫶 #raredisea
551.4K views4 months ago
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It’s rare disease day and around 300 million people live with a rare disease including 1 in 5 people with cancer. A disease is considered rare if it impacts less than 2000 people #raredisease #zebra #doctor #rarediseaseawareness #showyourstripes Disclaimer: For educational and entertainment purposes only and should not be regarded as medical advice or replace the advice of your physician
1:08
It’s rare disease day and around 300 million people live with a rare disease including 1 in 5 people with cancer. A disease is considered rare if it impacts less than 2000 people #raredisease #zebra #doctor #rarediseaseawareness #showyourstripes Disclaimer: For educational and entertainment purposes only and should not be regarded as medical advice or replace the advice of your physician
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Meine Erkrankung wurde weltweit nur bei 200 Personen dokumentiert & ich bin eine davon! 🙋🏼‍♀️ Viele seltene Erkrankungen sind ernst, chronisch und fortschreitend – oft sogar lebensbedrohlich. Und trotzdem fehlen für die meisten von ihnen: - wirksame Therapien, - ausreichende medizinische und wissenschaftliche Kenntnisse, - spezialisierte Fachärzt:innen. Genau darauf macht der #RareDiseaseDay heute aufmerksam. For the zebras in a world full of horses!🦓 #selteneerkrankung #chronischkrank #knoch
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Short videos

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I begged doctors to remove my eyeballs 😱🩹 #raredisease #medicalstorytime
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